It was a typical day in the office of my life.
My teen son on the autistic spectrum was panicking in the
car, and I was about to take on a man who was wielding a chainsaw and huddling by a
wood chipper!
It was hiking day at my son’s school, and we were at the
same park that I once comically entered its gates driving a red convertible with a guy wearing a cow costume sitting next to me. What can I say?
I’m a junkie for a good laugh (at least that is what I tell myself
instead of the other dreaded thought…you’ve finally lost it sista! Click here for the tantalizing story!)
Luckily the mayhem & madness police were off watching
Chips reruns and stuffing their faces with donuts on the day I decided to take on a man with a chainsaw,
allowing me to improvise in the only way I knew how…
By the seat of my
thinned-threaded sanity pants...
And
also by
intuition that I was learning to trust better as I balanced it against a memory
bank of “failed” outings and mothering moments that would leave Mrs. Walton and
Mrs. Brady shamefully scolding tsk-tsk and saying:
“That’s not how we reared you up in childhood when you were
glued to our shows! For goodness
sake, get it together!”
I used to view life in an all or nothing way. Fix it or fail! Naturally, with this mindset, I was a
big failure and I punished myself unmercifully. I admired all the warrior
wonder women of the world who seemed capable in my mind of leaping buildings of
challenge and angst in a single bound while I just felt like I was perpetually
blithering and dithering along wondering how I could get a fast pass to their
leader to show me the way as I constantly felt inadequate and ill prepared. Thankfully
life didn’t mock me as hard as I did myself and gradually I came to adopt a
gentler approach:
If I could just chip
away at pain and fear and challenge, even just a little, I was indeed making
progress and finding my way for myself and for my family.
In route to the park on this day my son said: “I can’t wait to hike! It's so much fun!”
Optimistically careening down the hill, the view of a lawn
crew working by the parking lot came into sight, challenging the hoped for
moment of a carefree school day. The sounds permeated through the windows of
our cocooning world of a car, and just like that, my son’s happy
anticipation was replaced with panic as we came to a halt in the parking lot.
He dramatically stated: “I can't hike!
Take me home! You can’t make me! I hate saws! It sounds like a monster!”
Red faced stomping and continued
laments ensued. Variations of this moment play out again and again in my son's life with intense fear always playing a starring role.
In the past my only coping tools fell into these categories:
Fantasy - I'm sitting in a Parisian cafe overindulging in wine and bread while bantering with intellectual hotties or riding a motorcycle as I nuzzle Colin Firth while we make plans to shag after the winery tour or galavanting across the globe saving orphans and whispering sweet nothings with Brad Pitt in roadside shacks.
Denial – This
isn’t happening! Everything will
be just fine! Just smile and be
happy! Has anyone seen my pearls
and ruby red slippers?
Bribery – If you
go on the hike, I’ll let you watch videos later! A reward of Skittles too? Sure why not indulge a sugar and artificial color high to
escape this moment!
Barking Orders –
There is nothing to be afraid of!
Now go hike!
At My Wit’s End –
Life is over for my son and me. Give
up, book the sanitarium bunk beds, commence wailing and purchase the drool cup emblazoned
in gold glitter: “Crazed & Certifiable!”
Thankfully on this day I flowed into a new, slowly emerging category
that once had consisted of waffling ideas and fuzzy thinking, but now was
becoming more fine-tuned:
Problem Solver.
I met my son in his pain, validating his very real fears and
disappointment over being startled by unexpected lawn crews. We considered various ideas that might help
him step out of the car as I soothed and remained calm.
But this story isn’t just about my boy and me. “It takes a village” is more than a
cliché in our world.
Two teachers were intervening by the car, trying to get my
son to open up the window an inch so they could talk to him and ease his
worries. A student with Aspergers
even came up and offered his quite logical advice:
“If you remain in the car you will be closer to the noise of
the lawn crews and it will sound louder; if you get out of the car, you will be
able to hike and get further away from the sound. Your best choice is to hike.”
However my son remained unconvinced and clung to his most
favorite option in the whole wide world:
Mommy save me and take me home!
Most of the staff and students took off hiking as my son
refused to budge although my “village” didn’t abandon us as one of its
members, a 6’4” Viking warrior of a man teacher tried to negotiate with the
burly, wood chipping, saw-wielding man to turn off the tools of his trade. Burly man won round one though as he declared
a resounding “no!”
You should know I have always taken “no” as the final answer
when dealing with authority figures, and by authority figures I mean anyone other than me.
I in fact have always fallen into lispy, wimpiness in such
circumstances with an internal thought process going something like this:
Okay, you win! I loothe!
Now where’th my mommy? Thomeone? Anyone? Thave me from the thcary
authority boogiemen of the world!
I’m not sure if it was due to a combo of hitting my 40’s
with a jaded edge as I've built up a thickened armor to the endless uphill climb and the inevitable tumble-back-down reality for countless years or if it
was just looking at my dear boy’s face and knowing I could not quit before
trying any and everything to ease his fears, but I managed to find something
that day that was normally hard for me to locate:
Hello inner fight!
Over the drone of saws and wood chippers, I approached Capt.
Burly man and asked if he would briefly turn off the buzz.
He angrily countered:
“I have work to do. I can’t
stop for him.”
I remained calm and repeated. “My son will miss his entire school day if you don’t give us
these few minutes.” I stared into his
eyes, letting go of my own fear and self-consciousness that had often bogged me
down in life.
He frowned. He grimaced. He huffily walked off and instructed his crew to turn
everything off. He shouted back to
me: “You got three minutes!”
In a whirlwind of activity, the noble Viking man teacher was
whistling down to another teacher to get my boy out of the car, as I was
running towards my boy to encourage him one last time. As Capt. Burly Man and
his lawn crew stood silent and motionless, we all watched my boy and two
teachers gloriously run at full speed and disappear down a trail together to join the rest of the group.
Every child who
struggles should have a village like mine: it rocks!
I often wonder what it truly feels like for my boy to feel so terrified of everyday occurrences, but I try to contain those types of
thoughts as they can sink me into despair. The helplessness I’ve often felt can be gut wrenching to say
the least, but I’m getting better at focusing on the small gains, chipping away
at anxiety one fearful moment at a time, knowing that for every obstacle we
surmount, we gain strength and fill memory banks with positive learning
experiences that propel us forward and empower us for the next time…and the
next time…and the next time.
I got in my car and exuberantly said to no one:
“Wow, we
triumphed!”
I drove away feeling like a lioness that harnessed her
often-elusive inner roar.
Later, when I picked my son up at the end of the school day, he said:
“I did it! I
worked through the fear! I had a great
day Mom!”
Not every outing ends so well, but together, my boy and I are harnessing
unimagined powers of resiliency, cultivating our inner fight, and sending out
our voices--sometimes timid and fragile, sometimes full of power--into
the greater world as we add our unique hum to the buzz of life…
As for the burly, saw-wielding, wood-chipping man, I am thankful that he eventually let go of his hard and fast rules that day. Sometimes letting down our guard and dispensing with our ideas about the way life is supposed to go can be freeing. I know for my son and me, we are finding something wonderful and amazing along the way:
Empowerment!
Love it! I'm happy for you and your son, and I'm grateful for your example!
ReplyDeletecrying again... good work!
ReplyDeleteI love reading your stories!
ReplyDeleteMy son is also really scared of sounds...mostly the loud ones that hurt his ears. I'm sure you have already did this with your son (you've been at this longer than I), but have you tried ear plugs? When my autistic son was 2, he developed a paralyzing fear of thunder. His little body would shake just hearing a storm coming. During a big storm, while we were hiding in the basement, I found a big pair of protective earpiece for working with machinery (Mr. Burly man was probably wearing some!). I put those big orange things on his tiny head and his body instantly relaxed.
Since that day (he is now 11 years old), we've had a couple of pairs lying around the house, the car, school...He almost never uses them anymore, except when thunder get really loud and also for the exceptional movie outing (my son doesn't like movie theatres, as they are too loud).
What I found was that they did not only calm him down, but they helped him get used to the scary sounds and learn not to be afraid of them...slowly, as he got more and more comfortable, we were able to wait before the storm got closer and closer before putting them on. Now he can go through entire storms without them and even watch fireworks!
I've suggested this once before on another blog and was shut down. The mom was not ready to have her autistic son (who didn't want to go to birthday parties, because he was afraid of balloons popping!) wear those "in public"!!! They do look a bit weird, but I don't care. I was able to take my son to Disney World because of those orange ear things! Without them we would not have left the room!
Anyway, just wanted you to know that this has worked really well for us and maybe it could work for your son (maybe it could have gotten him from the car to the trail).
Just a thought!
Thanks for the feedback. To the last commenter, I so appreciate your advice. Sorry to hear you were shut down in other forums. The whole point of blogging and commenting is to inspire and empower each other through what is often quite a difficult journey. I appreciate you taking the time to share of your own triumphs. We have tried every sound listening program and gone through an array of devices to block out sound. Sometimes ear plugs helped and seemed to give him some sense of control, but we found they sometimes created more problems as something would break or he could still hear a faint sound or it made him more obsessive about blocking out sound than he had been before. For my son, the sound sensitivity carries other underlying fears, so we shifted our focus as he got older to address his overall fears through a floortime oriented approach. For instance, at school he often hears sirens going by. This used to shut him down all day long as he would lament and cry about it. Through years of therapeutic work talking with him through those fears, both at home and at school, he can now hear them and not fall into catastrophic states. He has improved tremendously. Episodes like the one detailed in my story have gotten fewer and far between. We still pack an i-pod and headset with us for flights and restaurant outings as it helps him manage his anxiety about such outings. Thanks again for your comments and best wishes to you and your son.
ReplyDelete